All posts filed under: Newly Diagnosed? Start Here (Tips for Living with Coeliac Disease)

10 Symptoms That Let Me Know I’ve Been Royally ‘Glutened’ #CoeliacUKAwarenessWeek

It’s Coeliac Awareness Week this week (11th-17th May 2015, #CoeliacUKAwarenessWeek) and this year Coeliac UK is focusing on improving diagnosis of Coeliac Disease. It still takes an average of 13 years (13 YEARS!) to be diagnosed with Coeliac Disease, and even though approximately 1% of the UK population has it, only 24% of people with the disease are medically diagnosed.*  Part of the reason that it takes so long to diagnose, is that the isolated symptoms can be attributed to many different conditions (e.g. IBS, Crohn’s) and it can take a long time to join the dots. In my own small way, I want to help spread awareness of the sort of symptoms that can occur when “glutened”, and the impact they can have on day to day life. There are still far too many people who believe Coeliac Disease is about being fussy or faddy!  So, let’s go. 1. Thinking starts to feel like wading through treacle. I become forgetful, have difficulty focusing on tasks, can’t remember words (I am in my twenties – far from senile!). …

TMI alert: My endoscopy experience

There is a reason for my radio silence. My brain is only just getting back to normal after that pinnacle of  coeliac fun, the endoscopy. For those of you who don’t know, an endoscopy is a procedure whereby your insides are examined using an endoscope; a long tubey thing with a camera / scraper on the end. Sounds a bit horrifying, no? Read a proper medical description on the NHS page, here. An endoscopy with biopsy (sample collection) is still the gold standard, i.e. the only truly reliable method of coeliac disease diagnosis, so many in the gluten free community will at some stage go through it. There are always lots of questions in the forums and Facebook groups asking what to expect, so I thought I would share my experience. My reason for having an endoscopy this time was not coeliac diagnosis (I was formally diagnosed aged 2), but as more of a check up. I won’t sugar-coat it; the experience was not my favourite. The procedure itself was over within about 10 minutes, but the entire preparation, waiting …