All posts tagged: celiac disease

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Why I Always Take Notes: Brain Fog and Coeliac Disease

As a rather late tribute to Coeliac Awareness Week (9th-15th May 2016) , I thought I’d write about a lesser known symptom of coeliac disease. Brain fog. Though I’ve had coeliac disease since toddlerhood, I didn’t know there was a connection between brain fog and coeliac disease until about five years ago. I didn’t even know it was a thing. I thought it was part of my personality to be a bit ditsy, a bit dopey and forgetful. A bit Bridget Jones. Maybe it is to a certain extent, but I these intense periods of vagueness became more than that, and seemed to come and go with glutenings. What is brain fog? A lot of people assume that coeliac disease only affects the digestive system. This is untrue. Coeliac Disease is a multi-system autoimmune disorder. It can affect you neurologically. When I joined internet forums about coeliac disease, I noticed the term ‘brain fog’ floating around, and saw that I was far from the only one experiencing these symptoms. When the fog descends, I struggle with finding the right words and …

Coeliac on TV: My interview with ARTE

They say do something every day that scares you…WELL. I was recently invited to take part in a TV feature for European arts and culture broadcaster ARTE about the rising popularity of the gluten free diet…and I did it! I talked on telly! —————————————————————————————————————— My job was to give a coeliac perspective on the the changing world of gluten free food and show the reporters around a few of my favourite coeliac-friendly places in central London. We did an interview + some pretend blogging in Beyond Bread, another bit of interview and gluteny-food throwing in Cavendish Square, and a gluten free meal with my boyfriend David in Honest Burger. (All places featured in my 8 Places to grab a Gluten Free lunch near Oxford Circus post!) As a fairly reserved person, this was a hop skip and a jump out of my comfort zone. I had a great time filming with ARTE though, and I’d love to do more stuff like this in the future.  Here it is! This clip also features the blogger / cookbook maestro Deliciously Ella and Food …

Another day, another hospital appointment.

I realised this week that I have been asking doctors for answers for almost two years. As I have written about before, even though I stick religiously to the gluten-free diet, I have ongoing health problems that seemingly cannot be explained by coeliac disease. For a while I worried that it was all in my head, but I have since found countless stories from other coeliacs on Facebook, Twitter and online forums that chime with my experience. At this point it is likely that as well as coeliac disease, I also have IBS, or SIBO, or some other gut-related condition. IBS is the front-runner, and as this can only really be diagnosed through process of elimination, I have had (and am still having) every gut-related test under the sun. I have had a range of advice to help deal with the symptoms. A Dietician put me on the FODMAP diet, a Gastroenterologist recommended I try yoga, mindfulness and cognitive behavioural therapy, another Gastroenterologist prescribed me peppermint oil capsules to ease the pains…though some of these have helped to a degree, …